Monday Morning Reflections

I work so hard not to let my illness and my various health issues define me. The gratitude I feel and share with the world is real. It’s sacred. It has sustained me many times when I couldn't see the hope, the future, or a place for me in it. Gratitude saved my life. 

Health, Relationships

We Have Come to be Danced: Transforming Grief into Grace

Each time our health worsens or we undergo another surgery, another diagnosis, we experience a new wave of grief. It’s death by 1,000 cuts. It’s progression within progression, one disease playing off the other. It’s Relapse. Remission. Recurrence.

Chronic Pancreatitis

No Child Should Have to Hurt Like This

The loneliest people I see are those whose child (or children) are battling pancreatic disease. Their faces reach me like a beacon of despair, their pain hits me squarely in my heart.

Chronic Pancreatitis

Life Interrupted Part 3: A New Normal

As my disease progressed and my symptoms worsened, I became a “frequent flyer” at the ER - the term some ER staff use to refer to patients they believe are drug seekers.